How End-of-Life Issues Are Being Used to Thwart Health Care Reform
By Ann Neumann
July 29, 2009
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As they muster their forces against health care reform, Republican culture warriors and conservative media outlets stir fear of “deadly doctors” and "government-encouraged euthanasia".

Protesters outside Terri Schiavo's Florida hospice in 2005. Image courtesy flickr user killbyte

For the past several months, as I have worked on writing a book about death, dying, and grief, I have kept my ear to the Aid in Dying movement in the United States, listening in on both advocates and their “pro-life” opponents. I’d come to suspect that end-of-life issues would be a major hurdle to health care reform. Today, unfortunately, I am closer to being right.

Since House Minority Leader John Boehner (R-OH) released a statement on Friday accusing the health care reform bill of leading America down “a treacherous path toward government-encouraged euthanasia,” opponents of the bill have seized on the aspects of the bill that concern end-of-life choice as the great obstacle to the bill’s passage. Although the leap from aid in dying to "euthanasia" or even "assisted suicide" is patently false, and entirely misleading, everyone from Fox News to the New York Post, are scaring the elderly with threats of denied service and coerced assisted suicide.

Boehner's statement came at the end of a difficult week for the Obama administration: Obama’s poll numbers dropped notably; his health care road show received mixed reviews; and the administration was called out for lack of transparency regarding health care industry meetings. The media meme of the week, as House and Senate recess loomed, was no momentum. That Boehner chose Friday for the release, on the heels of all this successful stalling and as the five-day media cycle distractedly wandered off into the summer Friday afternoon, hardly mattered to the other “right-to-life” advocates, those concerned about the proliferation of assisted suicide in the United States.

“Pro-Life” Expands Its Reach

Increasingly, opponents of end-of-life choice have succeeded in inserting the fourth issue of the pro-life platform (abortion, stem-cell research, and cloning being the other three) into the national debate. While abortion issues will most likely remain the rallying point, and cloning and stem-cell research (Obama lifted the ban on the latter in February) have garnered little public interest, the bogeyman of euthanasia is proving to be a subject of greater use as Republicans work to frame their resistance to health care reform.

In part this is due to advocates and opponents successfully styling their efforts after their counterparts in the abortion conflict: privacy, “end of life choices,” and access to information have become the cause of assisted suicide proponents; their opponents have worked from the same “pro-life” institutions, language, and methodologies that were organized to protest abortion. With one significant new adjustment: Pro-lifers are now forced to argue for sanctity of the patient-doctor relationship and not, as with abortion, for government regulation of access to services.

In February, the New York Times Magazine featured an interview with President Obama that was immediately abstracted by groups opposed to aid in dying and circulated throughout the internet with the title “Obama: Euthanasia of the Elderly May be Necessary.” In the excerpt, Obama states, “Now, I actually think that the tougher issue around medical care… is what you do around things like end-of-life care.” Interviewer David Leonhardt interjects, “Yes, where it’s $20,000 for an extra week of life.” Obama recounts the decision his family faced when his grandmother fell and broke her hip a few weeks after being diagnosed with terminal cancer. She and the family decided that, that despite the risks of a replacement, she would “waste away” without it, immobilized, and suffer a decreased “quality of life.” Two weeks after the operation, her health further deteriorated and she soon died.

Obama continues:

So that’s where I think you just get into some very different moral issues. But that’s also a huge driver of cost, right? I mean, the chronically ill and those toward the end of their lives are accounting for potentially 80 percent of the total health care bill out there.

Obama’s comments acknowledge the inequality of our current system which, unethically, encourages those with health insurance to avail themselves of all available treatments. The insurance and care companies reap the profits and no one need watch the purse strings. Quality of life justifies this manner of operating—until we consider 40 million uninsured Americans who have limited quality of life services.

Charles Krauthammer, a columnist for the Washington Post, wrote a column the following Friday eviscerating Obama’s comments as indicative of a government plan to limit access to services for the sake of cost savings. “Why do you think the stimulus package pours $1.1 billion into medical ‘comparative effectiveness research’? It is the perfect setup for rationing,” he writes. “Once you establish what is ‘best practice’ for expensive operations, medical tests, and aggressive therapies, you’ve laid the premise for funding some and denying others.” Never mind that medical services are already grossly rationed. By class.

Krauthammer, and every Republican to comment on health care reform, is lifting rationing directly from talking points devised by Frank Luntz, the master spin doctor who created the term “death tax” and guided Republicans to a victory over Hillary Clinton’s health care plan 16 years ago. Other advice from Luntz? Emphasize the fatal dangers of bureaucrats determining who will receive services. Though he’s not explicit, bureaucratic rationing implies connotations of euthanasia: what the Nazis perfected on Jews in the Holocaust, or what government municipalities inflict on stray dogs.

Aid in dying is currently legal in three states: Oregon adopted the Death with Dignity Act (on which other states have modeled their subsequent bills) in 1994; Washington adopted the Washington Initiative 1000 in 2008; Montana, by court order, legalized aid in dying in December 2008. Despite being legal, end-of-life choice is still a contested right in these states. Doctor compliance is limited and the laws have extensive restrictions and requirements including psychiatric evaluation, a diagnosed life span of less than six months, and second opinion.

Nonetheless, the death with dignity movement has gained momentum as the population has grown older and advocacy organizations have become more savvy. Final Exit boasts more than 3,000 paying members and Compassion & Choices has offices in 38 states. In May 2009, the first death under Washington’s law was reported, and more than 100 legislative bills have been introduced in 24 states since Oregon’s legalization. As well, the strength of the aid in dying movement in other countries (notably England, Belgium, and Switzerland) has bolstered activists here. Public opinion on end-of-life choice is being tested in Georgia: in March, an undercover investigator lured Final Exit advocates into his home, claiming he wished to kill himself. They were arrested by local authorities and the case is pending hearing. A sentence of five years in jail accompanies conviction of assisting suicide in the state of Georgia.

Aid in dying advocates have not only been active proponents of state legislation; they have also resorted to petitioning national and federal courts. For the most part they were unfettered by the Bush administration. In fall 2004, the Florida Supreme Court ruled unconstitutional Terri’s Law, a hastily signed and highly publicized law designed to keep Terri Schiavo, a patient in persistent vegetative state for 14 years, on artificial sustenance against the wishes of her husband. The next year, in the midst of a media storm, the US Supreme Court refused to hear the Schiavo case, allowing for the removal of her feeding and hydration tubes. Despite extensive last-minute efforts, the Bush administration was unable to prevent her death by dehydration on March 31, 2005.

Later in 2005, Attorney General John Ashcroft issued a directive that banned drugs typically used for aid in dying in order to challenge Oregon’s law. But the US Supreme Court deemed the directive a violation of privacy. Alaska, Florida, Hawaii, Montana, and California all have right to privacy provisions in their state constitutions, and aid-in-dying advocates have successfully focused on producing legislature in these states. They found additional success in December 2008, when Baxter v. Montana legalized aid-in-dying in Montana. The case is being challenged by the state attorney general and is of particular concern to those opposed to assisted suicide; while Oregon and Washington laws include a conscience clause that permits doctors to refuse to participate, the Montana law does not. As Dobson noted on his radio show, requiring doctors to administer lethal drugs will push Christian practitioners out of the medical professions, thereby limiting choice for Christian patients. Or for patients who don’t wish to be cared for by a doctor “who kills people.”

A Duty to Stay Alive

A study published in the March issue of The Journal of the American Medical Association found that religious cancer patients were three times more inclined to seek extensive medical treatment in the last week of life than were non-religious patients. These decisions, the study notes, greatly increase medical fees and often prolong the suffering of the patient and their family. “To religious people, life is sacred and sanctified,” Dr. Prigerson, the study’s lead writer said, “and there’s a sense they feel it’s their duty and obligation to stay alive as long as possible.”

As Garret Keizer writes in his 2005 article for Harper's, “Life Everlasting: The Religious Right and the Right to Die,”

…the fear of playing God operates exclusively on one side of the medical playground. Thus to help a patient end his or her life ‘prematurely’ is playing God while extending it in ways and under conditions that no God lacking horns and a cloven hoof could ever have intended is the mandate of ‘our Judeo-Christian heritage’ and the Hippocratic oath.

Where voters—and politicians—line up on this medical playground is becoming increasingly more difficult to predict.

The occasionally astute Democratic strategist James Carville was asked by Leonard Lopate in May what finally caused the public to begin critical examination of the Bush administration. Carville replied with three points, two common to the media’s analysis of Bush’s decrease in popularity: the Iraq War and Hurricane Katrina. Carville’s third point was more surprising: Terri Schiavo. “One of the most,” and here he paused, searching for the right word, “uncommented on thing[s] was this Terri Schiavo thing. It really turned a lot.”

Perhaps Boehner and his Republican colleagues learned a lesson in 2005 when they tried to insert themselves into the Schiavo family’s private grapple with faith and end-of-life issues. (If the public remembers the Schiavo issue as partisan, RNC Chairman Michael Steele’s comment, also on Friday, that Obama’s health care reform will “make the Terri Schiavo case look like a walk in the park” contradicts current Republican framing of health care reform.) Perhaps they were emboldened by the week’s developments and the recent prediction that health care reform will be Obama’s Waterloo. Or maybe the Republicans have been so decimated by this administration’s successes since November that they feel the need, in order to slow down health care reform, to employ every tool in the box.

Regardless, Boehner found it necessary to confirm his commitment to the pro-life, anti-choice faction of the Republican base. Just not during the primetime news cycle.

Tags: assisted suicide, death with dignity, euthanasia, health, healthcare, obama

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revelation

I didn't understand what a hot button issue this was before this article. Thanks, Ann Neumann.

Some info for your book

If you are interested in the morality of euthanasia, the pros and cons, from the points of view of self centered ethics, God based ethics and society base ethics you might check out the "Euthanasia" chapter in Book 4 (On Human Values) in the free ebook series "And Gulliver Returns" --In Search of Utopia-- It is found at http://andgulliverreturns.info or on the Kindle site for less than a dollar.
Since it is copyrighted you would have to cite it, but because it is free it could probably be cited liberally.
Luck on your book. It is needed.

Thanks!

Thanks, Jeff.
Thanks for the reference ProfBob. I'll check it out.

Interesting article

Interesting article, thanks! I heard the euthanasia objection just within the last week from a politically conservative fellow employee at the health care facility where I am a chaplain. Seeing how economics affects treatment recommendations, I wasn't surprised the right had formulated this argument, but it's awful. Also, I think churches synagogues, and other spiritual communities need to do a better job educating their membership about their actual theological opinions about end-of-life care; I think that many members are more black-and-white in their views about preservation of life than their communities would ask them to be. Recently I was asked by a family member whether a DNR order is the same as suicide--in that family's faith tradition people are not obliged to accept futile care on the (mostly vain) hope that it will prolong the functions of the body. The family member was comforted to hear that, but it is too bad that it had to even be a question.

RE: Interesting article

The fact that the religious don't know the difference between a DNR order and suicide is a prime example of their willfull ignorance and emotionalism!

fascinating article

and a very timely one, as I just received right-wing spam arguing that "ObamaCare Equals Government Funded Euthanasia"! Thanks for being on top of this issue and for the illuminating look at how this issue is being raised as an extension of "pro-life" politics.

Living Will vs. Euthanasia

The GOP are incidious liars.

A "Living Will" >> if you CHOOSE

end of life etc...

Whats the fuss? Its old useless ones on one side and fetuses on the other end. Neither are really contibutors to society,At least African slaves had some economic value.And you all call yourselves Christians????Life is precious,whether its old or new.

Re: Some info for your book

ProfBob, that "And Gulliver Returns" is an incredible resource! Thanks for putting us onto it.

Chaplain Clair Hochstetler

End-of-Life Care Valued by Patients

Studies show that patients with terminal illness wnat end-of-life conversations with their physicians. The Vatican has criticized doctors who do not have these kinds of conversations.

http://www.dailykos.com/
story/2009/7/29/759518/
-Conservatives-Fearmongering
-with-End-of-Life-Care

Choice

Christians don't really care about "life" they just want to take away choices. If they cared about life they would be more concerned about a child's life beyond just 'saving the precious babies from abortion'. After that they drop the ball!

Consider the Role of the State

Neither this article nor any of the previous comments have addressed what I see as the most troubling part of page 425 of the health care reform bill. Yes, end of life decisions need to be made and need to be discussed, but the government should have no role in these decisions. End of life decisions are highly personal matters that should be decided by the patient, the patient's family, and his or her doctor. If you accept any kind of interference with these decisions, you are assenting that the government should control the timing and manner of your death. If the government's involvement in end of life counseling doesn't concern you, I would ask you to consider what other freedoms you would also like to hand over to the government. For those of you who are well-read, I observe, "Oh, brave new world, that has such people in it!" Those who would trust the government with their very lives must be under the influence of the fictional drug "soma", as Aldous Huxley called it.
By the way, I found some of the previous posters' comments about the religious right's view of death to be extraordinarily offensive. To judge another's religious views is beyond reprehensible. To say that those who wish to live a week more or a month more are "immoral" is beyond ludicrous. This is a very slippery slope. Will it soon be "immoral" to live out one's life if ill and need of many medications? How can you-or the government-decide the value of an individual's life?

RE: Consider the Role of the State

Anonymous,

With all due respect, I think you are misinformed about what the health care bill does with end-of-life counseling. The relevant provision of the Health Care Reform bill requires that Medicare cover the cost of advance planning consultations (i.e. end-of-life counseling) sessions every 5 years (more if the patient becomes seriously ill. That's it: the only mandate is on Medicare to cover end-of-life consultations for beneficaries if - and only if - the beneficary wants such a consultation.

Since these counseling sessions are completely voluntary (and there is absolutely no substance to claims that they would be mandatory), I really don't see how this amounts to government getting involved in end-of-life decisions. It's your right to oppose Medicare coverage of end-of-life counseling sessions, but there is no basis for saying it's going to lead down a slippery slope to a "Brave New World."

This comment has been removed from the site due to non-compliance with ReligionDispatches' community policies.
Choice

To the comment written by Aerie: what a mistake you are making by believing that religious people only want to remove choices. If you think that "choice" is about allowing the government to decide the timing and manner of your death, you are truly mistaken. You will be left with only one choice and that choice will unlikely be yours or your familiy's. In addition, religious people do care about life and it's sanctity.

G.W. Bush, Advance Care Planning Advocate

In 2003, under G.W. Bush, the federal Agency for Healthcare Research and Quality published a report recommending Advance Care Planning, with detailed guidelines for practitioners. Nobody called that euthanasia.

Advance Care Planning is legal in almost every state; the bill in question merely allows health care providers to be paid by Medicare for counseling patients on this matter, should the patient request this service - it would not be mandatory.

See: http://NotionsCapital.com

Consider the Role of the State

According to this letter, "Consider the Role of the State," I believe there is a misunderstanding about the government's role in end-of-life counseling. End of life counseling was not clearly available through Medicare previous to 2003, until President Bush kindly added this extension of care, and President Obama kindly honored this plan by retaining it within the 2009 Healthcare Bill. The intention was that Medicare would cover the costs of a social worker and/or a patient advocate to counsel families on alternatives when it became obvious to the family and to medical personnel that the patient is coming to the end of life. Families are naturally upset at the loss of a loved one, and counseling was only available, previously, to those who had private insurance, such as honoring the advanced directives of the patient; whether to send a terminal cancer patient to a hospice or to a family member's home when death is inevitable from a disease that is inoperable and incurable. The government is not dictating what will happen to this patient; the government is only affirming that they are willing to pay (through Medicare or government health insurance) the cost of the social worker and/or patient advocate. The American Government is not making any decision for the patient; the American Government is saying: Families may need counseling and we, the American Government, through a Medicare or a government insurance plan, are willing to pay this counseling medical bill if the family wants counseling. We still live in a democracy and are free to voice our displeasure at Senate Bills when we don't agree, but first, we should be sure that we have the actual facts before we decide to "town hall" someone in the government whose intention was to better serve American citizens. No one, during the Bush Administration, protested this expansion of Medicare offering counseling payment. Why is this same statement now perceived as the forming of a “death panel”? Is it possible that we are receiving false information that benefits purely self-interested organizations? Specific newscasts, opinion blogs, and a particular political party said nothing about a death panel when President Bush added it to Medicare. It is always possible to have corruption and deceit in government, but we must be sure we first learn the difference between fact and propaganda, and then act upon the facts, so that we do not destroy meaningful, ethical, and effective discourse between our citizens and our government

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